The Ever Evolving List - Jan. 1, 2016 Edition
8 years ago
Wednesday, December 8, 2010
The Kid
Justin, my nephew, also the best thing my brother has ever done for me, is all kinds of fantastic. I was grateful to spend time with him on Thanksgiving this year. We snuggled on the couch, watching the end of Rocky V (by far, the worst one...). Have I mentioned I'm ecstatic that he still likes to snuggle at the age of almost 11? Anyway, the movie panned to the infamous steps in Philly, which prompted Justin to say, "Oh, Auntie Carrie! I know what I keep forgetting to tell you! You know that book you got me at the Liberty Bell Museum when you went to Philadelphia last year? I read it and I really liked it." Could my heart melt any more? It was a children's history book about spies, and I knew he had been enjoying history and social studies in school. I thought it was a bit of a leap at the time, but figured it was worth a shot. It made me feel good that he read the book, of course. But that he remembered it was from Philly, and related it to seeing another representation of Philly made me realize how much he's growing up. Also great was the chat about what he wanted for Christmas. After rattling off a couple of Wii games, he mentioned he also wanted a few books. I called dibs on those - I figure I will keep feeding the book-loving side of him as long as I can...
Scoreboard
Today: No headache
I think it's day 4 or 5 since early October that I haven't had one. I look at this as significant progress given where I was. The trip to Mexico saw no significant changes to my headache pattern, which was great. I could've gone without the food poisoning, though. But I digress...
The scoreboard for this round of illness:
ER: 2
Family doctor: 2
ENT: 1
Dr. Neurosurgeon: 2
CT Scans: 2
X-ray: 1
MRI: 1 head, 3 spine
Blood word: 2 rounds
Headaches: countless
Support: immeasurable
Amount billed to insurance: tens of thousands...thankful for insurance...
Things are looking up on the health front. I'm anxious to try swimming laps soon, and look forward to seeing the results of the next MRI. Here's hoping for more progress...
I think it's day 4 or 5 since early October that I haven't had one. I look at this as significant progress given where I was. The trip to Mexico saw no significant changes to my headache pattern, which was great. I could've gone without the food poisoning, though. But I digress...
The scoreboard for this round of illness:
ER: 2
Family doctor: 2
ENT: 1
Dr. Neurosurgeon: 2
CT Scans: 2
X-ray: 1
MRI: 1 head, 3 spine
Blood word: 2 rounds
Headaches: countless
Support: immeasurable
Amount billed to insurance: tens of thousands...thankful for insurance...
Things are looking up on the health front. I'm anxious to try swimming laps soon, and look forward to seeing the results of the next MRI. Here's hoping for more progress...
Saturday, November 27, 2010
Dr. Neurosurgeon Part Deux
Tuesday saw another visit with Dr. Neurosurgeon. I got in much quicker this time, and the appointment didn't last long at all. So, the CT was normal (for the most part). I get to resume normal activities as tolerated, and have a repeat MRI and another appointment in February.
It all sounds great, and on several levels it is. I have had, officially, two headache-free days. But only two. And the headache I have right now, while not too intense, is aggravating to say the least. And to still have the spasm headaches yesterday made want to cry...not so much in pain, but in sheer and utter frustration. And, as always, crying makes it worse. I can feel my pulse in my brain.
Dr. Neurosurgeon gave me the okay to fly, and Mexico should be relaxing. I've been trying not to think about what might happen. I guess time will tell...
It all sounds great, and on several levels it is. I have had, officially, two headache-free days. But only two. And the headache I have right now, while not too intense, is aggravating to say the least. And to still have the spasm headaches yesterday made want to cry...not so much in pain, but in sheer and utter frustration. And, as always, crying makes it worse. I can feel my pulse in my brain.
Dr. Neurosurgeon gave me the okay to fly, and Mexico should be relaxing. I've been trying not to think about what might happen. I guess time will tell...
Monday, November 22, 2010
Not My Fault...
I meandered over to the hospital again today for yet another CT scan (thin slices this time! And the head, orbits and sinuses!) ordered by Dr. Neurosurgeon. So here's the sequence of events:
-Receive order at Dr. Neurosurgeon's office with instructions to schedule the CT appointment then contact the office for them to obtain the insurance approval. Check - received and understood the order!
-Schedule the appointment and cancel the outstanding MRI for my spine (figured I'd keep that one in case Dr. Neurosurgeon ordered another MRI of something...). Give the scheduling office all sorts of information, including the reason for the CT scan (note: foreshadowing). Check!
-Contact the office regarding the insurance approval. Check!
-Make sure the approval is granted - spoke with Dr. Neurosurgeon's office. Check!
-Show up a half hour early for said scan. Check!
-Sit down and talk with the registration employee. Frick!
So here's how the conversation goes:
Me: Good morning (as I hand her my doctor's order for the test, driver's license and insurance card without her asking because I'm that good of a patient). How are you?
Mean Lady: Good morning. You're here for a CT scan of your head?
Me: Yes, ma'am. And orbits and sinuses.
Mean Lady: Okay. And here's your insurance card and your license? And your doctor's order?
Me: Yes.
Mean Lady: (tapping away on her keyboard) And the reason for the CT scan?
Me: I believe it's on the order - they are looking for a CSF leak (falsely assuming her knowledge base).
Mean Lady: Well I don't know what that even means.
Me: They are looking for a leak of spinal fluid.
Mean Lady: (grabs giant book of medical codes and starts flipping furiously) *Mutter Mutter Mutter*
Me: I'm not sure how that's organized, but some search phrases could be cerebral spinal fluid or spinal fluid. The other diagnosis is spontaneous intracranial hypotension.
Mean Lady: Are you sure it's not a leak due to a lumbar puncture?
Me: Yes, I'm sure it's not.
Mean Lady: Well there's no other reason for a spinal fluid leak. I can't believe they didn't write down a number for this reason. See? (thrusting the book at me) There's leaks, and nothing for spinal fluid except for related to a lumbar puncture. What do you see?
Me: *bewildered and furious* Well, my spinal fluid is leaking. Spontaneously. And I haven't had a lumbar puncture. And maybe I'm a little off base here, but I'm guessing if you code it as related to a lumbar puncture, my insurance may not cover it as they haven't paid for me to have a lumbar puncture. And quite frankly, it's not my job to code this for you. I think it's a bit insensitive of you to imply that I have something to do with this. I informed your scheduling department of the reason for the CT when I called in.
Mean Lady: I just get frustrated with the doctor's offices.
Me: Well I'm sorry to hear that. Perhaps you could call the referring physician's office for the code. Or maybe you should focus on bringing this issue to the attention of your superiors who can fix your own scheduling and billing processes, as I gave them the information already, and it's fairly redundant to do so multiple times. I think that might be more productive and provide better quality customer service instead of being inconsiderate to patients who are leaking spinal fluid.
Mean Lady: You're right. I'm sorry. (tapping away on the keyboard again) Here's your paperwork. Please take all of this to the X-Ray desk and they will get you right in.
Me: Thank you.
Ugh. I didn't yell. I didn't swear. I didn't slap her upside the head like I wanted to. But I also wasn't going to sit there and let her be cranky to me. I like to think I took one for the team (the team being anyone who goes to that hospital for x-rays or other outpatient services...), and that Mean Lady will realize that maybe she should be nice to patients, but I'm not that much of an optimist, and really I think I maybe ruined her day just a bit like she almost ruined mine.
So, the saga continues. Up next: another trip to see Dr. Neurosurgeon!
-Receive order at Dr. Neurosurgeon's office with instructions to schedule the CT appointment then contact the office for them to obtain the insurance approval. Check - received and understood the order!
-Schedule the appointment and cancel the outstanding MRI for my spine (figured I'd keep that one in case Dr. Neurosurgeon ordered another MRI of something...). Give the scheduling office all sorts of information, including the reason for the CT scan (note: foreshadowing). Check!
-Contact the office regarding the insurance approval. Check!
-Make sure the approval is granted - spoke with Dr. Neurosurgeon's office. Check!
-Show up a half hour early for said scan. Check!
-Sit down and talk with the registration employee. Frick!
So here's how the conversation goes:
Me: Good morning (as I hand her my doctor's order for the test, driver's license and insurance card without her asking because I'm that good of a patient). How are you?
Mean Lady: Good morning. You're here for a CT scan of your head?
Me: Yes, ma'am. And orbits and sinuses.
Mean Lady: Okay. And here's your insurance card and your license? And your doctor's order?
Me: Yes.
Mean Lady: (tapping away on her keyboard) And the reason for the CT scan?
Me: I believe it's on the order - they are looking for a CSF leak (falsely assuming her knowledge base).
Mean Lady: Well I don't know what that even means.
Me: They are looking for a leak of spinal fluid.
Mean Lady: (grabs giant book of medical codes and starts flipping furiously) *Mutter Mutter Mutter*
Me: I'm not sure how that's organized, but some search phrases could be cerebral spinal fluid or spinal fluid. The other diagnosis is spontaneous intracranial hypotension.
Mean Lady: Are you sure it's not a leak due to a lumbar puncture?
Me: Yes, I'm sure it's not.
Mean Lady: Well there's no other reason for a spinal fluid leak. I can't believe they didn't write down a number for this reason. See? (thrusting the book at me) There's leaks, and nothing for spinal fluid except for related to a lumbar puncture. What do you see?
Me: *bewildered and furious* Well, my spinal fluid is leaking. Spontaneously. And I haven't had a lumbar puncture. And maybe I'm a little off base here, but I'm guessing if you code it as related to a lumbar puncture, my insurance may not cover it as they haven't paid for me to have a lumbar puncture. And quite frankly, it's not my job to code this for you. I think it's a bit insensitive of you to imply that I have something to do with this. I informed your scheduling department of the reason for the CT when I called in.
Mean Lady: I just get frustrated with the doctor's offices.
Me: Well I'm sorry to hear that. Perhaps you could call the referring physician's office for the code. Or maybe you should focus on bringing this issue to the attention of your superiors who can fix your own scheduling and billing processes, as I gave them the information already, and it's fairly redundant to do so multiple times. I think that might be more productive and provide better quality customer service instead of being inconsiderate to patients who are leaking spinal fluid.
Mean Lady: You're right. I'm sorry. (tapping away on the keyboard again) Here's your paperwork. Please take all of this to the X-Ray desk and they will get you right in.
Me: Thank you.
Ugh. I didn't yell. I didn't swear. I didn't slap her upside the head like I wanted to. But I also wasn't going to sit there and let her be cranky to me. I like to think I took one for the team (the team being anyone who goes to that hospital for x-rays or other outpatient services...), and that Mean Lady will realize that maybe she should be nice to patients, but I'm not that much of an optimist, and really I think I maybe ruined her day just a bit like she almost ruined mine.
So, the saga continues. Up next: another trip to see Dr. Neurosurgeon!
Sunday, November 21, 2010
Pure Joy!
Pure joy was having an entire day without a single headache. Not a twinge, not noticing squeezing my right eye shut, not a spasm - nothing. To make matters even better, I was without a good night's sleep, and had an early morning at Justin's swim meet. That kid is just fantastic - every time he hugs me I feel like my heart grows just a bit bigger.
And I managed to make it down to Hamtramck for dinner...we made it to the bakery early enough for me to get my angel wings. The pierogies weren't nearly as good as what Baba used to make, but those along with the potato pancakes and giant chalice of Polish beer made it feel like the holiday season.
And I managed to make it down to Hamtramck for dinner...we made it to the bakery early enough for me to get my angel wings. The pierogies weren't nearly as good as what Baba used to make, but those along with the potato pancakes and giant chalice of Polish beer made it feel like the holiday season.
Wednesday, November 17, 2010
Well, Hello Dr. Neurosurgeon...
And yesterday was the first of at least three impending trips to the neurosurgeon. Mom & Miss joined in the fun, which was good. Always good to have mom and a Ph.D. in comparative medicine at the doctor's visit.
Verdict? Spontaneous Intracranial Hypotension. Yes, I was leaking spinal fluid. No, we're not sure why. And though I'm a fairly concrete thinker, I'll have to accept that this may not be explained. I have another CT scan coming up, with another MRI in a few months to make sure everything has healed, assuming the headaches continue to heal. For now, I'm supposed to be active but not exert myself. Yeesh - talk about walking a tightrope - will have to do the best I can.
Fortunately, the last three days have been better...down to one or two spasm headaches per day, and the dull aching headache isn't starting until evening. I laughed at lunch today...unabashadly...without thinking and without pain. I was giddy afterwards. It really is the little things in life, sometimes, that make a big difference, as cliche as that sounds.
Verdict? Spontaneous Intracranial Hypotension. Yes, I was leaking spinal fluid. No, we're not sure why. And though I'm a fairly concrete thinker, I'll have to accept that this may not be explained. I have another CT scan coming up, with another MRI in a few months to make sure everything has healed, assuming the headaches continue to heal. For now, I'm supposed to be active but not exert myself. Yeesh - talk about walking a tightrope - will have to do the best I can.
Fortunately, the last three days have been better...down to one or two spasm headaches per day, and the dull aching headache isn't starting until evening. I laughed at lunch today...unabashadly...without thinking and without pain. I was giddy afterwards. It really is the little things in life, sometimes, that make a big difference, as cliche as that sounds.
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